This website has been created as a companion website to the living-with-als Yahoo Group for ALS patients, caregivers, families, and friends.

Many of the questions on the living-with-als group concern the equipment needed to deal with disability. Unlike other sites that provide a list of links to retailers and manufacturers, these pages are reviews of specific brands written by people who have purchased or tried them.

Have you designed, built, or adapted something that makes living with ALS easier? Share your creative genius in the Do It Yourself (DIY) section.

ALS repeatedly presents challenges that leave us stranded in unfamiliar territory. These Tip Sheets are intended to be a source of practical advice from the real experts -- PALS and CALS who have been there, done that, and are wearing the T-shirt that says "I wish I had known..."

Few homes have been built with wheelchair accessibility in mind, so ALS often requires some degree of remodeling. Share your Remodeling Projects with others here! Whether you want to share details such as floor plans, before and afters, tips and tricks, advice on getting the job done, or just show off some pictures of the finished product, we'd love to have your input.

Swallowing problems are an eventual part of living with ALS. These Recipes can help provide easy to swallow meals and snacks.

Are you searching for a web site that will give you information about ALS, care, equipment, research, organizations, support groups, or personal web sites? These Links were submitted by the members of living-with-als to help you find the most useful sites.

 

A practical guide to living with ALS by Diane Huberty RN and ALS patient. Topics include Muscle Spasms, Toileting, Constipation, BiPAP , Trachs and Vents, and much more.

Assembled by Randy Roberts, an ALS patient, this manual covers many topics and is of great value for those newly diagnosed.

Danny Dandignac presents an overview, of the benefits and financial assistance available as well as invaluable rules for dealing with denials by insurance companies.